Hi Havah
I am so sorry to hear of your progression to your liver.
I know exactly how you are feeling having gone through this for the last 12 years. But as you can hear Havah ..... 12 years and I am still here.
I had a couple of tumors in my liver for many years. We managed to keep them stable with different treatments. Mine happen to be in a location which allowed me to try the Abalation procedure back in 2003. Unfortunately a tumor returned in the area after 7-8 months so in Sept of 2004 I had that half of my liver removed. It has since grown back very nicely and so far cancer free. I will be honest and tell you that I have progression in another area but I feel that my liver is again healthy.
I just keep battling and doing lots of research to try to stay ahead of this predator in me.
I was on the Tykerb/Xeloda trial last year from Sept 2006 - Sept 2007 when I had pregression. But I feel that was a great response and they say that Tykerb can pass into the brain so I feel this is worth a try.
I would talk to your onc about how he feels about either ablation or surgery if possible to your liver. I know most doctors do not like to do surgery once it is systemic but I am in the process of talking to my onc about removing a couple that have popped up in my neck area if they are easy to get to either by ablation or surgery.
Good luck Havah and never give up my friend. You are worth the battle.
Please contact me if you want to discuss further. I have a strong shoulder and would be happy to help you in any way that I can.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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