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Andrea Barnett Budin · 12-23-2007, 12:30 PM

Yes, Cathy. I am most unusual my onc tells me. LOBULAR. ER/PR- HER2+. 4TH STAGE W/2 NODES OUT OF 21. ALL HIGHLY AGGRESSIVE. HENCE MY PROTOCOL.

HERCEPTIN FOREVER... + EV 6 MNTH TRANSVAGINAL PELV SONO, EV 6 MNTH CT SCANS (I BEGAN AT EV 8 WKS FOR OVER A YR, THEN EV 3 MNTHS, THEN EV 4 MNTHS, SO I KEEP GRADUATING.) I HAVE HAD 2 BRAIN MRIs, SO I HAVE A BASE LINE FOR POSSIBLE NEED OF SUCH A THING (GOD FORBID A HUNDRED MILLION XXXs). CHEST/ABDOMEN/PELVIS. (TRANSVAGINAL SONO SHOWS PLACES NOT SEEN IN CT.) I'M VERY BUSY STAYING ALIVE.

I BALANCE IT ALL AS BEST I CAN W/MEDITATION, GUIDED IMAGERY, SCRIPTING MY INNER DIAGLOGUE, DEALING W/ISSUES AT THE MOMENT OF THEIR ARISING AND THEN PURGING MYSELF OF THEM. ALL DAUNTING CHALLENGES. BUT I DO MANAGE TO LIVE JOYFULLY, IN HARMONY, CONNECTED TO MY SPIRIT AND THUS MY SOURCE AND EVER GRATEFUL...

WISHING YOU ALL A DAILY JIG WITH NED. I TRY TO LIVE WITH AN OPEN HEART AND AN LISTENING EAR...

Andi

12-23-2007, 12:30 PM	#9
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Yes, Cathy. I am most unusual my onc tells me. LOBULAR. ER/PR- HER2+. 4TH STAGE W/2 NODES OUT OF 21. ALL HIGHLY AGGRESSIVE. HENCE MY PROTOCOL. HERCEPTIN FOREVER... + EV 6 MNTH TRANSVAGINAL PELV SONO, EV 6 MNTH CT SCANS (I BEGAN AT EV 8 WKS FOR OVER A YR, THEN EV 3 MNTHS, THEN EV 4 MNTHS, SO I KEEP GRADUATING.) I HAVE HAD 2 BRAIN MRIs, SO I HAVE A BASE LINE FOR POSSIBLE NEED OF SUCH A THING (GOD FORBID A HUNDRED MILLION XXXs). CHEST/ABDOMEN/PELVIS. (TRANSVAGINAL SONO SHOWS PLACES NOT SEEN IN CT.) I'M VERY BUSY STAYING ALIVE. I BALANCE IT ALL AS BEST I CAN W/MEDITATION, GUIDED IMAGERY, SCRIPTING MY INNER DIAGLOGUE, DEALING W/ISSUES AT THE MOMENT OF THEIR ARISING AND THEN PURGING MYSELF OF THEM. ALL DAUNTING CHALLENGES. BUT I DO MANAGE TO LIVE JOYFULLY, IN HARMONY, CONNECTED TO MY SPIRIT AND THUS MY SOURCE AND EVER GRATEFUL... WISHING YOU ALL A DAILY JIG WITH NED. I TRY TO LIVE WITH AN OPEN HEART AND AN LISTENING EAR... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...