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Hi Marlys - true! I thought about that after I made the post!
I'm in exactly the same situation - I have given the web address to a dear friend - who organised a 2nd opinion for me - so she can read and learn from the wonderful folks who contribute here. Also I read quite a bit before I actually joined.
I guess the point Joe is making is that if the group doesnt come up on a google search then you wouldn't have any folks just reading like voyeurism (?sp) I did see a website once that had pictures of young women movie stars with (made up) pictures of their breasts with breast cancer! - sick eh?
Sorry - its probably just my paranoia kicking in. I'll leave the decision up to my more experienced, wiser members of this wonderful group. Thanks for the reality check.
Blessings
Hermiracles
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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