Lots of pieces
I think this past post of yours does justice to the whole concept, Lani. A lot of different people connected to this website would have to develop the shared commitment to it through shared effort or it probably won't go very far. Thanks for ALL that you do at this site to encourage better treatment in all kinds of ways.
San Antonio is one opportunity for people who are interested to meet in person and develop that kind of commitment. Even though not everyone is going to be able to grasp all that was presented, their viewpoint as patients is valuable here. I like Joe's suggestion, too, about the possibility for a conference at some point to put together the kinds of people who would actively be involved. I'm sure it wasn't easy when Kathy Guisti put together something, especially when so many of those who are involved are dealing with the disease and all of the disadvantages involved with that, but nothing will happen until some make the effort to get started. I suggest that as a first step maybe a chat could be set up for all those who attended SABCS to be available for discussion limited to this topic. A separate chat could be offered for more general discussion as well.
AlaskaAngel
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