HER2 Support Group Forums - View Single Post - patient centered her2+ breast cancer research--PLEASE VOLUNTEER to donate your tumor

StephN · 12-17-2007, 11:39 AM

Dear Lani -
We have not forgotten your "mission" in San Antonio. In my case I am just trying to digest ALL the new information that has been posted here in the past week, as well as waiting for you to get unpacked and find your information.

As one who as attended the San Antonio symposium twice, I totally understand how the high energy and constant presentations can affect one's ability to keep every last detail straight. Personally, I have never experienced such an intense energy level as felt at that symposium.

It is like people's brains are bouncing off one another. There is important and stimulating conversation at every turn. Information overload is very easy to attain, and you went the extra mile to seek out presenters and researchers that might want to leap ahead with HER2 research.

THANKS!

12-17-2007, 11:39 AM	#4
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Where can we take this? Dear Lani - We have not forgotten your "mission" in San Antonio. In my case I am just trying to digest ALL the new information that has been posted here in the past week, as well as waiting for you to get unpacked and find your information. As one who as attended the San Antonio symposium twice, I totally understand how the high energy and constant presentations can affect one's ability to keep every last detail straight. Personally, I have never experienced such an intense energy level as felt at that symposium. It is like people's brains are bouncing off one another. There is important and stimulating conversation at every turn. Information overload is very easy to attain, and you went the extra mile to seek out presenters and researchers that might want to leap ahead with HER2 research. THANKS! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.