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Mary Jo;
I take this test regularly and I think for someone like yourself who is ER/PR- it would be a very valuable tool as you are not taking a hormone inhibitor. By taking it initially to get a level following treatment....hopefully it would be low, you could take it only every quarter year or half year unless you saw it raising. You could then increase the frequency to monitor it. If it continued to raise you would then expect to take herceptin again at least until it is lowered to normal levels. In this way you would have a way to try to keep from having an actual tumor develop. That is one theory in any case. My onc follows my results with interest and this is how we are intending to use the test....as an indicator of when herceptin is necessary without a tumor being identified.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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