View Single Post
Old 12-06-2007, 02:45 PM   #24
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
I missed the $200, too!

Boy can I relate to the shock you must be feeling. I went from Stage 0 to Stage IV! From club NED to club DEAD. That will definitely give you a twisted sense of humor. My oncologist and surgeon were in complete denial!

That was a bit over 3 years ago. I was fortunate to have a 2 great oncologists who never gave me an expiration date.

I dearly loved my original oncologist and somehow always felt like (after having told me I was "cured" 2 years prior) he was particularly invested in me living a long life. I called him "Dr. Cautiously Optimistic". He dropped dead of a heart attack at 42...I'd secretly planned to outlive him, but was thinking more of me being 86 and him 78.

My 2nd opinion doctor, "Dr. Hope", gave us just that - hope that I might respond well and for a long time to the numerous new therapies coming down the pipe for Her2+ ladies. She used the "chronic" analogy that others have mentioned. She told me that women are living longer with this disease and managing it for many years.

I guess what I'm saying is, I'm SO sorry that you are now on a different road than you had expected. But neither you nor your doctor can say how long that road will be.

Do not lose heart, it is not over - you can and will gear up and continue the fight. Keep the faith. Keep the fight. For yourself and those beautiful BB's.

We're all pulling for you.

Much love
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote