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StephN · 11-28-2007, 06:00 AM

Dear Tricia -
I was wondering about Carol as we had not heard from her since shortly after her move to Ireland. Sorry to learn that she is still having problems with progression.

Wonder WHAT kind of radiation therapy they have in mind. If they will target the fastest growing with something like Gamma or Cyber knife, that could be a good plan.

If you check Pattyz's posts you will see that Temador and Xeloda have helped her. Since Tykerb will be available, can Carole start the Xeloda portion early - like NOW??

A woman I know started first with Xeloda and then added the Tykerb. I think her bone mets were successfully radiated.

All my best wishes and bright blessings for Carol as she faces these next decisions. May her oncs listen to her fears and respond.

11-28-2007, 06:00 AM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Dear Tricia - I was wondering about Carol as we had not heard from her since shortly after her move to Ireland. Sorry to learn that she is still having problems with progression. Wonder WHAT kind of radiation therapy they have in mind. If they will target the fastest growing with something like Gamma or Cyber knife, that could be a good plan. If you check Pattyz's posts you will see that Temador and Xeloda have helped her. Since Tykerb will be available, can Carole start the Xeloda portion early - like NOW?? A woman I know started first with Xeloda and then added the Tykerb. I think her bone mets were successfully radiated. All my best wishes and bright blessings for Carol as she faces these next decisions. May her oncs listen to her fears and respond. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.