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Old 11-26-2007, 02:57 PM   #16
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Multiple Issues To Be Addressed...

Sheila! As usual, so many points to make. First off, my port is the best thing I ever did. Outpatient w/all the who cares what they do meds. BARD, older version ('98). They told me to wait 2 days before doing chemo. It was sore. I was woozy for the rest of the day and was happy to rest comfortably at home sleeping on and off. Think the chemo same day thing out, please. I know you are made of steel, but, be good to yourself.

Does the new model have an opening that leaves it prone to infection? One of the ports does, and I would not want that personally. I do use my port for all blood draws, and contrast. Have been a regular at the Imagining Center for CTs since '98 and never had a problem. Two salines flushes before and after w/Heploc.

Re numbing spray! I used this for yrs. Then I learned that it is viewed by some chemo nurses as another invitation to expose the port to infection, which has a direct line to your heart. It also degrades the skin. So I have sworn off the lidocaine. It pinches for an instant, then done, IN.

With a port -- my onc says you must take 4 500 mg Amoxicillin 1 hr prior to any and all dental work. I also checked w/gastro guy before colonoscopy. Antibiotic to protect you is essential at such times! Hope everyone knows this. I mentioned it at the dental office. Very efficient Collette said she just read NEW guidelines on the Net, don't need antibiotic anymore. I called my onc. YES. IF YOU HAVE A PORT YOU MUST TAKE ANTIBIOTIC! VERY IMPORTANT. Seems new guidelines pertain to matters of the heart, not to port patients. I clarified that w/Collette for others, who may be misled. Thank you for telling me, blah, blah.

So, Sheila, much to think about here. I am sending you my love and constant amazement over your extraordinary strength, courage and attitude. You are a role model for us all! I will think of you on Thursday. Please consider not overdoing.

Bottom line -- you're going to love your port! But you will learn to guard it well. I won't let anyone who isn't familiar w/accessing a port touch me! Which is yet another conundrum -- having a top of the line model that no one has worked w/. That's the good news and the bad. Sorry, to be full of so much advice, but I guess that's what comes w/a two timer. (This is my 2nd port which I got w/my met...)

Keep smiling, sweet Sheila! We all love ya...
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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