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Chelee · 11-26-2007, 12:45 AM

Its been said many times before...but there truly is no board around remotely close to this one...not if your her2/neu. Everyone on this board plays an important role but I really just wanted to mention what I call the long time her2 gals. Its so hard to believe when 1st DX that you can make it...let alone if you recur. We have so many women here that have *not* recurred, and some that have been down one very difficult road...but are still here to tell about it & that gives one hope. We all know HOW much one needs that when you 1st get the news. Although it pains my heart to know what many have been thur.

Audrey, I am so glad you are going to stick around. When I 1st found this board I remember reading one of your posts along with your signature & it gave me so much hope when I needed it that most. I have to say congratulations on six years. That is just wonderful to hear! I so appreciate you staying in touch with the board when you have time.

TriciaK in Utah...yes I did mean you.

You always manage to pop in and answer a post when someone really needs you. That means your lurking, and ready to lend some encouragment and hope to those that need it so badly. Your story & that long list of women mentioned in this thread are so inspriational to all of us. I'm sure some of you like to check into see what new drugs are out & advances that might of been made, but no one makes you women help out the rest of us. You all do that out of the kindest of your hearts. You women give back of your own free will and that is such a blessing to all of us. Some of you are having a rough enough time going through more trts, different drugs but still find it in you to help others. What an amazing bunch of women here. (Bev, I smiled at your last sentence.) lol

Chelee

11-26-2007, 12:45 AM	#21
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Its been said many times before...but there truly is no board around remotely close to this one...not if your her2/neu. Everyone on this board plays an important role but I really just wanted to mention what I call the long time her2 gals. Its so hard to believe when 1st DX that you can make it...let alone if you recur. We have so many women here that have not recurred, and some that have been down one very difficult road...but are still here to tell about it & that gives one hope. We all know HOW much one needs that when you 1st get the news. Although it pains my heart to know what many have been thur. Audrey, I am so glad you are going to stick around. When I 1st found this board I remember reading one of your posts along with your signature & it gave me so much hope when I needed it that most. I have to say congratulations on six years. That is just wonderful to hear! I so appreciate you staying in touch with the board when you have time. TriciaK in Utah...yes I did mean you. You always manage to pop in and answer a post when someone really needs you. That means your lurking, and ready to lend some encouragment and hope to those that need it so badly. Your story & that long list of women mentioned in this thread are so inspriational to all of us. I'm sure some of you like to check into see what new drugs are out & advances that might of been made, but no one makes you women help out the rest of us. You all do that out of the kindest of your hearts. You women give back of your own free will and that is such a blessing to all of us. Some of you are having a rough enough time going through more trts, different drugs but still find it in you to help others. What an amazing bunch of women here. (Bev, I smiled at your last sentence.) lol Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.