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Old 11-24-2007, 06:55 PM   #40
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Exclamation Please Do Not Say You Do Not Care...

I hasten to insert that there was much invaluable information on the vanquished thread that has been eliminated because of malice. That is not a victory, nor a reason to feel glad. Additionally, when a person's feelings have been trampled upon, though a few came to speak out for what is right and to remind those who chose to be vindictive and attack on a personal level -- that is also not a time to say *I don't care* or *I am glad I missed it*! HE WHO ALLOWS OPPRESSION SHARES THE CRIME. To look the other way, to avoid unpleasantness, is to contribute to the perpetuation of offensive behavior, not to rectify it! This site depends on the civil behavior and respectfulness of all who come to post here and those who come to glean insight. The loving support found here, in addition to the wealth of information and experience, is what makes *this* HER2 SUPPORT group so unique and vital to so many people trying to get a foothold. Let us not forget this fundamental attribute, as we dip in here for comfort and direction... We each bear responsibility for this continual fountain of understanding and knowledge generously shared by those willing to bear their Souls...
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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