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Flori,
When I was 'new' to bc, back in 2000, I was an active member on first two, then four bc support group/sites.
Into my first yr of mets, I found I needed more. More hard information, more first hand life experiences in living with mets. More real understanding and true empathy. Not pats on the back and 'you'll overcome this.' etc. Less 'fluff', more reality.
Though I still visit three of those first groups, I now 'belong' to my bcmets.org group.
Having mets is different. Or has been, for me.
There are issues of 'survivor guilt' after having mets for this long, losing one dear sister after another, month after month, year after year. There are issues of chronic, disabling fatigue. Multiple long term side effects. Issues of 'putting affairs in order'. When to call in Hospice. What to leave as a 'legacy'. Decreasing options of treatment. and on and on. I find what I now need with other metsters.
But, that's just me. I realize many, if not all of these 'issues' are inclusive to all dx'd with bc at some point.
Warm wishes,
pattyz
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