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Susan and others with same problem,
I had swelling of feet and ankles while on herceptin, and it got worse as year progressed, not better. Immediately after my last infusion in August, I had huge dimples surrounding my ankle bone and was quite worried about my heart. I also had shortness of breadth. However, my stress echo in late June showed my EF was 60%.
In September, without herceptin, the swelling was gone. I still have shortness of breadth and get winded quite easily, so perhaps that was not the herceptin--I don't know, but I know for sure that the swelling was herceptin. It started with herceptin and went when the herceptin went. I hope that's the case with the rest of you.
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