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Ann;
I know it sounds like such a big deal but I don't think it has to be. There is a young lad (19) in my small town who produced a DVD on the Seaway Project (St. Lawrence River). He wrote a script, interviewed people and recorded this using digital equipment, had it edited (by a pro in a slightly larger town...Cornwall) and had it produced in a very professional looking cover and case. It sells well and tells a good story. I agree it would be wonderful if one of the big networks produced this but I think that is not the only way. My concern is actually recording the ongoing history of our struggle and those involved now....while they're still here with us...and remember...lol. Look at how much has changed in just a few years.
Thanks so much for your thoughts,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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