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Get repeat readings on the slides - both the new slides and the original slides from another laboratory. This is extremely important because Ruth's hormone profile (most recent) is exactly like mine and for PR neg but only moderately ER+ does not respond well to Tamoxifen. Therefore, being postmenopausal is more important now.
Send the slides to a large teaching hopsital for a second opinion pathology. I did this and sent to both Sloane and Johns Hopkins as Sloane said something different versus my local hospital. Johns Hopkins conferred with Sloane (I also had a separate DCIS that I wanted to ensure did not have an invasive component. All 3 labs said no).
Do it! Its important to ensure the right pathology.
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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