HER2 Support Group Forums - View Single Post - a "muance" to consider if contemplating APBI (accelerated partial breast irradiation)

Andrea Barnett Budin · 11-06-2007, 03:52 PM

I was going to look up the word muance, as it was in quotes and seemed so authoritative! Thanks Lani for saving me the trouble...

I must ask. I can't contain myself any longer. I have been reading your posts for over a year, always w/great interest. They are informative and thought-provoking always... And there are nearly 1700 of them!

However, I see you do not have a SIGNATURE or a PROFILE, Lani. I don't even know if you are a female, or if you have bc, let alone HER2+ gene. I would have PMd you, but neither that or sending an email are an option for under your member name. Would you be willing to share w/your Sisters and Brothers a bit of who you are, as we all do?

You have great medical understanding that's for sure. Is it through personal experience? Please forgive my being so forward as to ask these questions. As I said, I would have done it privately if I could have, but this is the only way to contact you. I would guess others would be interested in knowing more about our Lani cohort...
Andi

11-06-2007, 03:52 PM	#3
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	For Lani... I was going to look up the word muance, as it was in quotes and seemed so authoritative! Thanks Lani for saving me the trouble... I must ask. I can't contain myself any longer. I have been reading your posts for over a year, always w/great interest. They are informative and thought-provoking always... And there are nearly 1700 of them! However, I see you do not have a SIGNATURE or a PROFILE, Lani. I don't even know if you are a female, or if you have bc, let alone HER2+ gene. I would have PMd you, but neither that or sending an email are an option for under your member name. Would you be willing to share w/your Sisters and Brothers a bit of who you are, as we all do? You have great medical understanding that's for sure. Is it through personal experience? Please forgive my being so forward as to ask these questions. As I said, I would have done it privately if I could have, but this is the only way to contact you. I would guess others would be interested in knowing more about our Lani cohort... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...