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Sheila · 11-06-2007, 06:52 AM

Kathy
I am in your shoes....literally. I should have been done with Taxol back in September, but the oncologist upped it for 6 more months/. I have had a great response, but she wants to go the extra mile, it seems when I go off something, the neck nodes come back with a vengence. I have the Herceptin and Avastin too....I have had no problems in my hands, but my lower legs, like from the knee down, within 2-3 days of getting a treatment, I get the leg achiness, and semi numb feet. It makes it hard to sleep at night. My legs feel like they weigh a ton...or like I have run a marathon! Other than the nosebleeds, and Decadron Weight Gain, I have found the Taxol easy to take....I just don't relish 6 more months. But, I guess she knows best, and it is working. As far as your hot spots go, fx ribs are common if you have had radiation, I had one without radiation and the hot spot in the hip could be arthritis...the bone scans seem to pick up any inflammation...seems they are quite sensitive which is good and bad. Dona D from Crystal Lake just went through a rib xray to confirm the FX rib after a vbone scan showed a hot spot.

11-06-2007, 06:52 AM	#3
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Kathy I am in your shoes....literally. I should have been done with Taxol back in September, but the oncologist upped it for 6 more months/. I have had a great response, but she wants to go the extra mile, it seems when I go off something, the neck nodes come back with a vengence. I have the Herceptin and Avastin too....I have had no problems in my hands, but my lower legs, like from the knee down, within 2-3 days of getting a treatment, I get the leg achiness, and semi numb feet. It makes it hard to sleep at night. My legs feel like they weigh a ton...or like I have run a marathon! Other than the nosebleeds, and Decadron Weight Gain, I have found the Taxol easy to take....I just don't relish 6 more months. But, I guess she knows best, and it is working. As far as your hot spots go, fx ribs are common if you have had radiation, I had one without radiation and the hot spot in the hip could be arthritis...the bone scans seem to pick up any inflammation...seems they are quite sensitive which is good and bad. Dona D from Crystal Lake just went through a rib xray to confirm the FX rib after a vbone scan showed a hot spot. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin