HER2 Support Group Forums - View Single Post - her2 actaully 3 pos, need guidance..please

sassy · 11-01-2007, 10:35 PM

Suzanne,

So sorry you had to join us, but glad you found this site.

I am triple positive, my info is all in my signature. I would guess chemo including a taxane with Herceptin. Ovary supression of some type if necessary and an AI. Not sure about rads, probably will depend on Stage and Node status. I have done them all ( including rads) and am doing well 2 1/2 years out. I would also recommend a second opinion---best to look at all options.

Things may look scarey now--but as Chrisy said, it is all doable, expecially when you think of what you have to look forward to-- a long life with your children.

Come here for support and information. Everyone will be helpful and here for you at any time.

11-01-2007, 10:35 PM	#9
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Suzanne, So sorry you had to join us, but glad you found this site. I am triple positive, my info is all in my signature. I would guess chemo including a taxane with Herceptin. Ovary supression of some type if necessary and an AI. Not sure about rads, probably will depend on Stage and Node status. I have done them all ( including rads) and am doing well 2 1/2 years out. I would also recommend a second opinion---best to look at all options. Things may look scarey now--but as Chrisy said, it is all doable, expecially when you think of what you have to look forward to-- a long life with your children. Come here for support and information. Everyone will be helpful and here for you at any time. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!