HER2 Support Group Forums - View Single Post - Hi I'm new here/ Q re length of Herceptin treatment

sassy · 10-28-2007, 08:39 PM

I too am a triple positive stage III. You can see all my info in my signature. The standard for stage III is the same as "early", which is one year. My onc kept me on for 18 months--we were hoping for the results of the two year trials. He found early info on the two year study indicating that two years was not statistically significantly better than one year, so we stopped at that point. I'm comfortable with the amount of Herceptin I received--even though at first it felt like my "security" was gone.

Were you post menopausal when diagnosed? I ask because I am taking Lupron to stay in menopause and am interested in what others are doing.

Sorry you had to join this group, but you will find great information and support.

My best to you.

10-28-2007, 08:39 PM	#3
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	I too am a triple positive stage III. You can see all my info in my signature. The standard for stage III is the same as "early", which is one year. My onc kept me on for 18 months--we were hoping for the results of the two year trials. He found early info on the two year study indicating that two years was not statistically significantly better than one year, so we stopped at that point. I'm comfortable with the amount of Herceptin I received--even though at first it felt like my "security" was gone. Were you post menopausal when diagnosed? I ask because I am taking Lupron to stay in menopause and am interested in what others are doing. Sorry you had to join this group, but you will find great information and support. My best to you. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED! Last edited by sassy; 10-29-2007 at 07:48 PM.. Reason: info from Becky