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Old 10-28-2007, 01:14 AM   #3
Chelee
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Join Date: Feb 2006
Location: Southern, CA
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Hi Jean, I do know Bilateral Salpingo-ooph means the ovaries and tubes. But I can't help but think it would be mentioned in the surgical report? It is a very detailed report...nothing was left out it would seem? But nothing about tubes? I find that strange? I'm just grasping for straws here. I've been up to my 2nd opinion onc over this issue MONTHS ago. She talked to 3 doc's up there and they all agreed I needed to see an endocrinologist and have a battery of tests run. I've done that...everything checks out ok.

Its been SIX months since my ooph...even if it took a while for the estrogen to taper down...it certainly wouldn't take this long. All my doctors agree. But my onc just says she doesn't know what to do with me and sent me on my way. A month or so back my FSH was finally looking like it was going up...it made it to 13.5. But now AFTER my 2nd implant of zoladex its back down to 2.5. My estradiol was in a good range for a while...it was between 6 and 9...but now its climbed to 28 and still rising. (My onc likes my estradiol to be under 20...so do I at the bare minimum.) I've had no side affects of menopause at all? You would think I would after an ooph and two months of zoladex? I've had my FSH and estradiol ran five times now. So does anyone know if my tubes were NOT removed if this could cause enough estrogen to have my FSH and estradiol showing that I'm still peri-meno? I really need some help with this please. Thanks so much for your reply Jean.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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