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Old 10-26-2007, 07:12 PM   #13
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Firstly news: Got my wrist Xrayed after logical discussion with my registrar (current one is fine again, it changes every 6 months here) so that was good.

Anyhow its so great to be able to relate to all of you besides being on the other side of the pond. So just for that and discovering a great country the vaccine was worth it!!

Yes in my experience Taxotere was hard on my joints. By the end my joints would be locked up after say having watched TV for a sometime just a little while after. I suppose it is collateral damages, almost expected from chemo. .
I have googled and saw some other random post about 'post chemo arthritis', developping in thumb first. A bit scarry I must say when you first read about it...which is what I have just been doing infact.

What do they mean by the basal joint of the thumb (is that close to the nail or close to the wrist) not sure waht side they are talking about?

I remember that you have recently been diagnosed with Osteopenia just learned that apparently we can loose as much as 30% of our bone mass within the first three years.(http://www.youtube.com/watch?v=u4aXFkfqOoY). Perhaps I should get a bone scan too?

I have to say that both issues just kind of hit me since I am chemopaused since my first FEC, and all is still so new and I suppose I have been waiting to see whether it would be permanent.

I really do not think that the vaccine is contributing at all. In fact some forms of arthritis only are autoimmune. http://www.uhn.ca/donate/aarc/site/p...adisorders.htm). and it is only affecting my right thumb which may be more to do with beaten up joint with chemo.

Thanks also Dhealy just checked about carpel tunnel syndrome and yes this could definitely something to considere. http://www.ninds.nih.gov/disorders/carpal_tunnel/carpal_tunnel.htm I have to say that the more I read it the more appropriate it sounds to what I have. In all honesty I am honestly hoping that it is the problem here, because outcomes are good.

I am going to France next week maybe I'l do something there (cheaper to see specialists and no queues) so I can know what it is as it could take weeks here just for dx.. (it took 7 weeks from the time I saw my GP about breast lump until I got seen for a biopsy..)

Will let you know, thanks all for your help again, it really helped!!!
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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