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Believe51 · 10-24-2007, 06:35 PM

Not the news we were aiming for but the Tykerb/Xeloda recipe is not working for hubby. Petscan showed progression in bones but the good news is it is not in organs. We almost felt that it was not working but needed to give it some time to be sure. Ed will start a new chemo regime after a 2 week break from the current drugs.

His numbers are as such: Ca27/29 is at 350 and the CEA is 7.2!!!! They have steadily rising over the last several months.

We did find out where he has some arthitis so that will help with the weather related pain explainations for this coming winter. Of course he has cosen to try another chemo regime. Ed will be on Adriamycin/Cytoxan and will be starting that on 11/9.

What else can I say? Damn you Cancer, give us a break!!

I know I have learned about this combo many times before but any feedback on this combination will help us to fight this dreaded disease a little better. No use crying over this (even though I am). We are so disappointed. At one point we were almost in remission, only for a moment, and it has never let up since. I am prepared for anything at this point, have been for some time now.

Our blessing today: He is still here to fight, Brain MRI showed improvement, Not in organs, Some arthritis, New chemo recipe prepared for take off.

and girls...how do you say

Ugggghhhh???? >>Wiping my eyes so I may say Thanks>>..Believe51

10-24-2007, 06:35 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 3,000	~Husband's 2nd Petscan Results.... Not the news we were aiming for but the Tykerb/Xeloda recipe is not working for hubby. Petscan showed progression in bones but the good news is it is not in organs. We almost felt that it was not working but needed to give it some time to be sure. Ed will start a new chemo regime after a 2 week break from the current drugs. His numbers are as such: Ca27/29 is at 350 and the CEA is 7.2!!!! They have steadily rising over the last several months. We did find out where he has some arthitis so that will help with the weather related pain explainations for this coming winter. Of course he has cosen to try another chemo regime. Ed will be on Adriamycin/Cytoxan and will be starting that on 11/9. What else can I say? Damn you Cancer, give us a break!! I know I have learned about this combo many times before but any feedback on this combination will help us to fight this dreaded disease a little better. No use crying over this (even though I am). We are so disappointed. At one point we were almost in remission, only for a moment, and it has never let up since. I am prepared for anything at this point, have been for some time now. Our blessing today: He is still here to fight, Brain MRI showed improvement, Not in organs, Some arthritis, New chemo recipe prepared for take off. and girls...how do you say Ugggghhhh???? >>Wiping my eyes so I may say Thanks>>..Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!