HER2 Support Group Forums - View Single Post

sassy · 10-23-2007, 08:04 PM

Kim,

I've been on Neurontin for about 7 months now. Helped a great deal and really alleviated some other side effects (neurological) that I was having. It also greatly helped me to make more of myself (HAHA)!

I tapered off my Neurontin and it helped with the appetite for about two weeks--then the hot flashes and the side effects came back with a vengance. So I'm back up to a higher dosage--feeling great and starving to death!

Hope you are doing well.

10-23-2007, 08:04 PM	#3
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Kim, I've been on Neurontin for about 7 months now. Helped a great deal and really alleviated some other side effects (neurological) that I was having. It also greatly helped me to make more of myself (HAHA)! I tapered off my Neurontin and it helped with the appetite for about two weeks--then the hot flashes and the side effects came back with a vengance. So I'm back up to a higher dosage--feeling great and starving to death! Hope you are doing well. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!