HER2 Support Group Forums - View Single Post - Taxol does not for most bc, today's headline

AlaskaAngel · 10-11-2007, 10:12 AM

Lani and Becky,

Thanks very much for understanding so well how everyone feels about this and that it is a topic high on the anxiety scale for everyone.

As one of the Lost Regiment of HER2's (those with tumors that were either under 2 cm or node-negative and ineligible for the Herceptin study), to learn that HR-responsive HER2's were also prohibited from benefitting from the TAILOR-X study has been frustrating to say the least. They cannot get good answers to questions about node-negative HER2's if they keep excluding us.

All of this is all the more important in considering Maryann's poignant post of yesterday regarding chemotherapy-induced leukemia, and her efforts to be as honest as possible with everyone about her experience, no matter how hard it is for her to express the negative.

The most difficult therapy (i.e., "throwing the book at it") does not equate to the most protection for everyone.

AlaskaAngel

10-11-2007, 10:12 AM	#14
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	The most awful therapy doesn't equate to the most protection for everyone Lani and Becky, Thanks very much for understanding so well how everyone feels about this and that it is a topic high on the anxiety scale for everyone. As one of the Lost Regiment of HER2's (those with tumors that were either under 2 cm or node-negative and ineligible for the Herceptin study), to learn that HR-responsive HER2's were also prohibited from benefitting from the TAILOR-X study has been frustrating to say the least. They cannot get good answers to questions about node-negative HER2's if they keep excluding us. All of this is all the more important in considering Maryann's poignant post of yesterday regarding chemotherapy-induced leukemia, and her efforts to be as honest as possible with everyone about her experience, no matter how hard it is for her to express the negative. The most difficult therapy (i.e., "throwing the book at it") does not equate to the most protection for everyone. AlaskaAngel