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Old 10-10-2007, 07:53 PM   #16
Esther
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Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
Thanks for all your responses, my weight had stayed the same since I graduated from college. I had always been fairly slender. Vitamin H seems to have changed that.

I went off Herceptin to switch to Tykerb, since it crosses the BBB and may have some impact on brain mets.

Once off Herceptin I lost 10 pounds in the first few months. I am back on Herceptin after 5 months off of it due to an increase in liver enzymes, and CA 27-29. A pet/ct scan showed no real measurable liver increased activity, but I think there may have been some minor progession that is too small for the pet/ct to pick up on. I am so sensitive to any changes, and I felt liver pain, nausea and lack of appetite, which for me are signs of liver mets.

I've had 2 weekly infusions of Herceptin so far, and feel 100% better.
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