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You are a beautiful young lady!
Just out of curiosity, there are zillions of genetics to get tested, which one did you have done? I didn't fit the profile for many of the tests out there, but then a couple of years ago, we fit the profile for the p53 tumor suppressor gene. We were told we were in the clear 15 years ago under the same p53 testing. Testing is complicated. Just because they say they didn't find anything now, doesn't mean there isn't genetic factors. Being in the 30's and getting breast cancer, there is imho something genetic going on. Not to scare you, but I just hope to pass along some information that I wish I had known a LONG time ago before I started having children.
OK and now an even bigger question. Why does you back hurt? (Don't panic when you read my history!)
Love the new due! Julie
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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