Thread: a bad news ..
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Old 09-29-2007, 05:15 PM   #24
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
I hope I can be a...

part of your family too! Husbands can be wonderful (or so I have ehard ), but no one knows the way someone in your exact shoes knows and that is us! And again, there are so many options for you and I noticed that you were on tamoxifen at some point and I'm not sure how current that info is, but for some her+++ gals tamoxifen can cause a problem. I'm not even sure if the medical community knows how or why until we try it, but it can fuel it for a subset of patients (I was one of those).

So have good discussions with your doctor or doctors. Look at RFA, look at drug combos (Taxotere/Xeloda initially knocked back my extensive mets as have other treatments since). Do your research (you don't even need to leave this site for great research info) and advocate for yourself and we will be here with you!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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