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Sheila · 09-29-2007, 06:01 AM

Patricia
From someone who has been dealing with the neck node issue for almost 5 years now, mine started out the size of a raisin when I felt it above my collar bone on the same side as my mastectomy. Mine occured during reconstruction while I had the tissue expanders in, so 2 Dr's thought it was an immune response. I demande an excisional biopsy, and the path report showed lymph nodes containing Her2+++ Er- Pr- , same as my Breast Cancer. (I was node negative at original diagnosis). I cannot comment on the one to the back of the neck, but I would call your onc. and maybe they can get you in for a CT before the appointment...just make sure they include the neck.
I am hoping it is just inflammation and nothing else is there...neck nodes are a pain in the butt to treat...they just keep coming back for more.

09-29-2007, 06:01 AM	#2
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Patricia From someone who has been dealing with the neck node issue for almost 5 years now, mine started out the size of a raisin when I felt it above my collar bone on the same side as my mastectomy. Mine occured during reconstruction while I had the tissue expanders in, so 2 Dr's thought it was an immune response. I demande an excisional biopsy, and the path report showed lymph nodes containing Her2+++ Er- Pr- , same as my Breast Cancer. (I was node negative at original diagnosis). I cannot comment on the one to the back of the neck, but I would call your onc. and maybe they can get you in for a CT before the appointment...just make sure they include the neck. I am hoping it is just inflammation and nothing else is there...neck nodes are a pain in the butt to treat...they just keep coming back for more. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin