HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 09-26-2007, 08:52 AM

Thanks Brenda. YOU are a genius. I was just going to say -- for future -- what I have learned to do is:
GO TO OUR SITE http://www.HER2SUPPORT.org/
GO TO MESSAGE BOARD AND CLICK
GO TO HER2 GROUP AND CLICK
*THREADS* ARE LISTED CHRONOLOGICALLY, W/THE MOST RECENT AT
THE TOP, KEEP SCROLLING DOWN, AND GOING TO NEXT PAGE TILL
YOU GET TO THE DATE YOU ARE SEARCHING FOR AND SEEK OUT
THE TITLE OF TE THREAD.

Sometimes the SEARCH at the top of this page works. CLICK and type in the words of what you are looking for. Not as reliable as I would like every time.

With all my posts this site sometimes won't accept my post as I have not logged in. So I log in again and again and again and keep getting denied. This happened as I was sending my thoughts to Havah! I was thinking, what is going on? I am trying to help this very desperate woman. I looked up and pleaded for HELP. I got through...

I finally learned to START a thread by going to the top of the page on the left, with help from those I PMed. It took yrs for me to figure out to add my signature and profile. I am a slow learner...

ANDI

Any questions Penelope, or any one, ask away. I am here for you. Any time.

09-26-2007, 08:52 AM	#8
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Thanks Brenda. YOU are a genius. I was just going to say -- for future -- what I have learned to do is: GO TO OUR SITE http://www.HER2SUPPORT.org/ GO TO MESSAGE BOARD AND CLICK GO TO HER2 GROUP AND CLICK THREADS ARE LISTED CHRONOLOGICALLY, W/THE MOST RECENT AT THE TOP, KEEP SCROLLING DOWN, AND GOING TO NEXT PAGE TILL YOU GET TO THE DATE YOU ARE SEARCHING FOR AND SEEK OUT THE TITLE OF TE THREAD. Sometimes the SEARCH at the top of this page works. CLICK and type in the words of what you are looking for. Not as reliable as I would like every time. With all my posts this site sometimes won't accept my post as I have not logged in. So I log in again and again and again and keep getting denied. This happened as I was sending my thoughts to Havah! I was thinking, what is going on? I am trying to help this very desperate woman. I looked up and pleaded for HELP. I got through... I finally learned to START a thread by going to the top of the page on the left, with help from those I PMed. It took yrs for me to figure out to add my signature and profile. I am a slow learner... ANDI Any questions Penelope, or any one, ask away. I am here for you. Any time. __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...