Thread: Port Questions
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Old 09-25-2007, 01:40 PM   #26
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Exclamation I Love My Port!

My port was installed in '98 in my upper chest under twilight. I love my port. It is a tiny half a golf ball lump that is a bluish tinge.

I used to get a lidocaine spray, but nurses have told me that IT IS JUST ANOTHER INVITATION FOR GERMS AND AN INFECTION TO GET IN THERE. So, now, I just brave it out. A skilled nurse gets dead center and you basically feel nothing.

IF YOU ARE BETWEEN TX for a long period of time -- remember -- you must get your port FLUSHED monthly!

IF YOU HAVE DENTAL WORK (including cleaning) my onc says that if you have a port -- YOU MUST TAKE AMOXICYLINE (how in the world do you spell that??!) which is an antibiotic -- 1 hr prior to dental appt. 4 X 500 mg.

A PORT IS A DIRECT LINE INTO YOUR VEINS AND HEART. You must protect it at all times. I am most particular about who I allow to access it. (When I broke my ankle and required surgery in '01, they did not know how to access a port in anesthesia, or they preferred not to use it.) After surgery, I was receiving morphine through my port, when it came time to check out sev days later I kept calling the nurse to take out the morphine needle. Apparently, she didn't know how and kept leaving and coming back, then when she removed it/yanked it out, blood starting pouring all over! So, I have learned a good lesson.

Before and after accessing, they use saline to clear the port and then heplok to seal it. They also use something to sterilize the area prior. Afterward, they put a circle bandaid to keep in place till I shower, as they would an injection. I am told they do not need to put gauze and tape on it, it isn't a wound.

HOPE THIS IS HELPFUL! My port is one of the best decisions I have ever made. I just love having it (as the one part of me that is *skinny* is my veins)! I am told once they find one it rolls over, collapses or blows out. So they just keep stabbing -- and digging -- away otherwise. Be good to your port, ladies. It's your best friend. Keep it, and YOU, safe.... Love,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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