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Old 09-23-2007, 12:40 PM   #69
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Christina,

That quote is now embedded in my computer. I love it. Use your suffering as a creative force. Transform yourself. To save myself from bitterness I have chosen to view my suffering as an opportunity -- for myself and in turn, for those around me. To set an example for my children and those who come with me and after me. Just beautiful.

RE ZOFRAN. When on shock and awe chemo, they gave me Zofran as a pre med in the infusion before the infusion, if you know what I mean. Then, they gave me a prescription for Zofran and told me to take it first thing in the morning. But what if I don't feel nauseous?, I asked. The nurse thought for an instant and said, TAKE IT ANYWAY. (She knew something...I surmised.) I thought, why didn't they give me all these prescriptions at my last visit to the onc? But anyway, Paul and I filled the scrip on the way home, waiting for it to be filled. Wanting to have it ready.

We got home around 5ish. I felt okay. We went out to dinner. Mid dinner I started to feel weird. Queasy. I couldn't eat. Then it started to escalate to the point that I asked Paul to get the check so we could go home. I washed up and got into bed. I felt lousy. Around midnight I heard my voice moaning. I was thrashing around. I felt like throwing myself overboard and just giving in to drowning.

I woke Paul, who could sleep through anything. Take a Zofran, he said. But they said to take it first thing in the morning. I was a newbie. I wanted to follow doc's order to the letter. He said, What time is it? 12:05. IT'S TOMORROW. TAKE IT NOW. I did and felt better within a half hour. Yes, that loggy, foggy feeling, but tolerable vs intolerable.

For mild queasiness I found that Phenergan worked best for me, having less of a knock out punch than Zofran (when the big guns weren't really needed). The *usual* med they give you for this did not work at all on me. Kytril?, I think. Like eating a banana for me. No effect. I learned quickly what worked for me and denied using the other immediately upon hearing the name. This would work for your TUMMY thing, I think, taking the edge off. Though feeling hungry and being unable to eat became the norm for me when on major chemo. A metallic taste, an inability to taste foods I ate and used to love. A craving for new things, like cucumbers which used to be tasteless and now I find wonderful. Lost 33 lbs.

FOUND IT. And then some... ANYONE ELSE HAVE A WEIGHT GAIN PROBLEM ON HERCEPTIN? It's most annoying as I never ever eat dessert of any kind (not a single piece of candy, a bite of cake or cookie), don't eat anything fried, etc. I should be having more FUN at my present weight. Well, I guess I am having fun -- being alive and all!

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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