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If it is *really* a pineal cyst in my brain causing these headaches...everything I've read about it is says they are very difficult to remove without serious risks to consider. (Sounds like they will only try to remove it if it gets to big & starts causing other problems.) So I'm not so sure what this brain surgeon can do for me at this point? I do know the pain behind my eyes, and this constant headache is killing me. It never lets up. All my brain MRI's from day one have mention this cyst...but it *always* says probably represents a pineal cyst. Its the probably part that concerns me? I hope its not brain mets?
Joe, I live in Orange County...is your concern that it might be brain mets more so then a pineal cyst? I've had four brain MRI's and so far they all suggest its a pineal cyst. (But other things have not been ruled out yet.)
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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