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Old 09-21-2007, 02:54 PM   #7
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Talking Calling All Hot Chicks!

ATTENTION ALL YOU HOT CHICKS OUT THERE. I asked my nut/onc (nutritional oncologist guru/healer). He put me on 4 X Black Cohosh, which I have taken since '98 to little avail. It's been 2 wks. I am definitely noting a change.

I asked my OB/GYN son-in-law about progesterone cream. He gave me a lengthy intelligible response but said I must check w/my onc. I asked my Boca rock star onc re progesterone cream and he shrugged. He doesn't know about it. He could prescribe a short term low dosage if I really wanted. Wouldn't that mean that when I went off the progesterone the flashes would come back? Not necessarily. Some times it can change the cycle, like after 3 mnths on. He could also give me a patch. But, you know, he said -- you really shouldn't be taking it.

This I know, but... QOL has been severely impinged upon. It is out of control (for 20+ yrs) and I just can't take it anymore. It is worse than ever. But, meantime, w/Black C -- clearly needs a better NAME! -- I am absolutely getting much relief. Which is *safer*???? No one knows. If GYNs don't know and ONCs don't know, I read. Mixed reviews, depending on who you read. It's a crap shoot.

BTW, my oncs interest in my flashes, as w/past GYNS over the decades -- registered as ZILCH. No understanding of the plague. No real compassion. Not motivated. Over the shoulder answers on the way out the door... This does not please me.

I'll keep you posted. Please -- y'all do the same!

With love and clammy hugs (ICK!)...
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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