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StephN · 09-21-2007, 12:29 PM

Dear Sheila -
The above phrase is the philosophy that my med onc took in regards to my aggressive liver mets. Thus when (after 3 months) I had a scan that showed only 3 small spots that were hard to distinguish between scar and shrinking mets, he said I want you to take three more treatments and we will scan again.

Since I was on weekly, I knew there was an end, and had to swallow the pill and agree.

Knowing that there can still be thousands if not millions of cancer cells that are not visible by scan, I felt this was a good way to just continue the attack. It was a good decision, as I have remained NED, as hard as it was to tolerate the extra treatments.

I am thinking positive for you, that "no time off for good behavior" (we know you ALWAYS behave!) will make the difference this time.

Then you get your whole life back as a reward, even though you are not quite the same. In my opinion getting off treatment with a good prognosis is better than "guerilla raids" against the mets from time to time.

GO GET THEM!

09-21-2007, 12:29 PM	#8
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hit it hard and hit again Dear Sheila - The above phrase is the philosophy that my med onc took in regards to my aggressive liver mets. Thus when (after 3 months) I had a scan that showed only 3 small spots that were hard to distinguish between scar and shrinking mets, he said I want you to take three more treatments and we will scan again. Since I was on weekly, I knew there was an end, and had to swallow the pill and agree. Knowing that there can still be thousands if not millions of cancer cells that are not visible by scan, I felt this was a good way to just continue the attack. It was a good decision, as I have remained NED, as hard as it was to tolerate the extra treatments. I am thinking positive for you, that "no time off for good behavior" (we know you ALWAYS behave!) will make the difference this time. Then you get your whole life back as a reward, even though you are not quite the same. In my opinion getting off treatment with a good prognosis is better than "guerilla raids" against the mets from time to time. GO GET THEM! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.