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Chelee · 09-21-2007, 01:02 AM

Joanne, I take Norco & Ibprofin for pain. I take these for my *back & hip* pain. Even with those, my axilla still hurts. As to seeing a thoracic surgeon...I called my primary doc & he is putting in an authorization for one. So I should hear back from then next wk & can set-up an appt soon.

As to my age, I just turned 50 in June. My decision for an ooph was easy since my onc kept playing games with me & would *not* give me my zoladex on time! Every month when my zoladex shot was due, she would make me wait & do labs to see if my estradial was in post-meno range when I KNEW it wasn't. I was very peri-meno & she knew it. My estradial would climb each month fast while she made me wait for lab results. She did this every single time. So I never got my Zoladex on time. Even my 2nd opinion onc asked WHY she kept doing this to me. So with that nonsense..& the fact I had a cyst on my ovary that needed removed, I told the GYN lets just take them both and be done with it. Especially since I wanted to take an "AI". Both ovaries were sent to path and no malignancies were found. As far as side affects from the ooph...I didn't have any. No hot flashes, dryness, nothing which made me wonder? So long story shorter I hope. Found out I had some ovarian tissue left behind that can actually cause enough estrogen to be produced just like I never had my ovaries removed. (Unbelieveable!) So for me...my ooph was all for nothing other then removing the one cyst. They have ran 4 FSH tests on me since my ovaries were removed and I am still in the peri-meno range. So I JUST got back on Zoladex this last Monday. Which is what I did NOT want to do.

As to my port in my arm...they are placed in the chest much more then the arm. In fact I was *just* told a wk ago from the head nurse in the chemo area that they are NO longer going to place them in the arm. It left a big scar on my inner arm...looks awful...but its the least of my concerns. It worked like a charm.

Chelee

09-21-2007, 01:02 AM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Joanne, I take Norco & Ibprofin for pain. I take these for my back & hip pain. Even with those, my axilla still hurts. As to seeing a thoracic surgeon...I called my primary doc & he is putting in an authorization for one. So I should hear back from then next wk & can set-up an appt soon. As to my age, I just turned 50 in June. My decision for an ooph was easy since my onc kept playing games with me & would not give me my zoladex on time! Every month when my zoladex shot was due, she would make me wait & do labs to see if my estradial was in post-meno range when I KNEW it wasn't. I was very peri-meno & she knew it. My estradial would climb each month fast while she made me wait for lab results. She did this every single time. So I never got my Zoladex on time. Even my 2nd opinion onc asked WHY she kept doing this to me. So with that nonsense..& the fact I had a cyst on my ovary that needed removed, I told the GYN lets just take them both and be done with it. Especially since I wanted to take an "AI". Both ovaries were sent to path and no malignancies were found. As far as side affects from the ooph...I didn't have any. No hot flashes, dryness, nothing which made me wonder? So long story shorter I hope. Found out I had some ovarian tissue left behind that can actually cause enough estrogen to be produced just like I never had my ovaries removed. (Unbelieveable!) So for me...my ooph was all for nothing other then removing the one cyst. They have ran 4 FSH tests on me since my ovaries were removed and I am still in the peri-meno range. So I JUST got back on Zoladex this last Monday. Which is what I did NOT want to do. As to my port in my arm...they are placed in the chest much more then the arm. In fact I was just told a wk ago from the head nurse in the chemo area that they are NO longer going to place them in the arm. It left a big scar on my inner arm...looks awful...but its the least of my concerns. It worked like a charm. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.