HER2 Support Group Forums - View Single Post - Help-axillary web syndrome?

dchips1 · 09-18-2007, 09:54 PM

I had the "cording"come up after my mastectomy with lymph node disection. From my wrist all the way across the shoulder to surgery site. It came back after my onset of lymphadema. We also did u/s doppler of the arteries/veins to make sure no DVT's or clots.

The PT I saw is trained in the Vodder methods for manual lymph node drainage and was familiar with this. MY surgeon , love him but did not have a clue! I found a one liner in Dr Loves 2nd edition book.

There is also instances after plastic surgery(usually cosmetic) to the chest/armpit/breasts in non cancer patients that my PT knew about.
She suggested gentle perpendicular massage, stretching just till pain just starts, hold for 5 seconds, the relax. Warm shower helps with this. Lying in bed flat and extending arm in all directions.

Mine resolved in about 6 weeks each time. Good Luck Darita

09-18-2007, 09:54 PM	#11
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	AWS or cording I had the "cording"come up after my mastectomy with lymph node disection. From my wrist all the way across the shoulder to surgery site. It came back after my onset of lymphadema. We also did u/s doppler of the arteries/veins to make sure no DVT's or clots. The PT I saw is trained in the Vodder methods for manual lymph node drainage and was familiar with this. MY surgeon , love him but did not have a clue! I found a one liner in Dr Loves 2nd edition book. There is also instances after plastic surgery(usually cosmetic) to the chest/armpit/breasts in non cancer patients that my PT knew about. She suggested gentle perpendicular massage, stretching just till pain just starts, hold for 5 seconds, the relax. Warm shower helps with this. Lying in bed flat and extending arm in all directions. Mine resolved in about 6 weeks each time. Good Luck Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.