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Leslie,
It has been one year since my bilateral mast. I still have a little "cording."
This is what my PT and my personal massage therapist call it. I do not think that I have the severity that you have. I just have to be vigilant in my stretching. I do yard work and golf a little and walk a lot. I kind of feel like it will always be with me. Luckily I do not need my arms for working on my computer at work. And luckily I work part time.
So sorry that you have uninformed and defensive medical people. Keep up the good work in getting the informed ones to help you. Wish you could go to my PT she is so informed. BC patients are her speciality.
All the best, Catherine
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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