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Old 09-13-2007, 07:31 PM   #2
PinkGirl
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Join Date: Jul 2007
Location: Canada
Posts: 2,193
Post herceptin

Hi Rosemary

Sorry you're having all this pain while on herceptin. I had minimal joint pain during taxol and herceptin, but at some time I also started taking tamoxafin and then switched to arimidex. I was never positive about what was causing the pain. When I finished herceptin, I still had joint pain but it was from the tamoxafin and then the arimidex. Same goes for the weight gain.... I started gaining weight when I started taxol. The steroids (pre-meds) made me very hungry, but I also started herceptin with my first taxol, so maybe it was the herceptin, or maybe both! Then the treatments put me into full menopause which can also lead to weight gain. I've stopped gaining weight, but it has been very hard to lose it -- very stubborn weight. Don't know if this is helpful; basically I couldn't really tell what was causing what; there were too many different things going on. Good luck with everything.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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