HER2 Support Group Forums - View Single Post

Joanne S · 09-13-2007, 12:09 AM

Dr. Susan Love Research Foundation

http://susanlovemd.org/breastcancer/...p?L2=3&SID=153

The Internet is wonderful for searching for information, but you need to be a savvy surfer.

Here are a few guidelines

· -Know who is sponsoring the site and whether they have anything to gain from the information given.
>>
· -Know the credential of the person answering questions or giving medical advice.
>>
· -Check to see that the information is current.
>>
· -Look to see if the information is backed up by references in scientific journals.
>>
· -If information that you get on a site disagrees with what your doctor has said, print out the page and bring it in to discuss with the doctor. >>

09-13-2007, 12:09 AM	#2
Joanne S Senior Member Join Date: Aug 2007 Location: Detroit Metropolitan Area, Michigan Posts: 592	Dr. Susan Love Research Foundation http://susanlovemd.org/breastcancer/...p?L2=3&SID=153 The Internet is wonderful for searching for information, but you need to be a savvy surfer. Here are a few guidelines · -Know who is sponsoring the site and whether they have anything to gain from the information given. >> · -Know the credential of the person answering questions or giving medical advice. >> · -Check to see that the information is current. >> · -Look to see if the information is backed up by references in scientific journals. >> · -If information that you get on a site disagrees with what your doctor has said, print out the page and bring it in to discuss with the doctor. >> __________________ Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+ Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4 Dec06-Nov07...Herceptin Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders Mar07-Jun07...Saline Exp Jun07...Start Tamoxifen Jun07-Aug07...Rad x 25 Jun07-Oct07...Persistent fevers-unknown origin Jun07-Nov07...PT for Severe PMPS & Capsular Contracture Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly. Feb08...NED 1st CANCERVERSARY!!!!! Feb08...2 months post surgery Caps Cont again :( Mar08...Stop Tamoxifen. Start Arimidex. Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks Feb11...NED 5th CANCERVERSARY!!!!! Feb12...NED 6th CANCERVERSARY!!!!! Aug12...Spotting. Surg=D&C Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+). Sep12...Stop Arimidex. Start Afinitor & Aromasin. Jan13...MRI = no progression no reduction Apr13...Progression. Stop Afinitor & Aromasin. Apr13...Start Chemo: Taxol & Carboplatin. Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston. Jan14...PET scan = no progression stable. May14...Pelvic > Bleeding & cramps. TMs up. May14...PET scan = uterine progression :( May14...Stop Fareston. Start Chemo: Xeloda.