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Old 09-12-2007, 08:27 AM   #3
Margerie
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Join Date: Aug 2006
Posts: 492
From what I understand, if you have other mets, you should be getting regular brain MRIs. If you have node + her2+ local disease, it is not unreasonable to want one, but is not standard protocol. Since her2+ can set up shop in the brain first, although this is not likely, and this is the most important time to catch anything in it's infancy- I requested a brain MRI last year, even though I am Stage 3. My onc asked if I was having headaches or dizziness. I said no. He said "Marge, are you having headaches or dizziness?" and gave me the look. You know, you have to report something to the insurance, bless his heart.

My MRI was "unremarkable". Didn't mind not attracting attention to my self then. Now I am up for renewal, so to speak. The flip side is every little headache, light headedness (getting off the massage table yesterday) you have brain met club in the back of your mind. I am hoping for another unremarkable brain mri. Then I will be 2 years out and I think I will not continue these unless I have defiite symptoms.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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