HER2 Support Group Forums - View Single Post - Interesting Support Group

Chelee · 09-02-2007, 01:58 PM

I think that's a great idea. I wish they had done that at my place. Like Steph mentioned...the place I'm at really wasn't set-up for that. Some of us use to joke that they *didn't* want any of us talking. There are about 11 chemo chairs and they are all seperated about 5 feet or so away from each other. They are all *open* for everyone to see you unless you want the curtain pulled closed around you which no one did.

There we so many that really felt like they didn't want any of us talking to each other? If we signed in for our chemo...the *minute* any of us would start a conversation they would run out and grab you. Then if you started to talk to the person next to you they would also come up and find something to do to inturrupt any talk. It might of been coincidental...but I know many of the women commented about this. We all wanted to talk and share information...but it seemed impossible. So I like what this group did in Bakersfield. That would of been awesome. I might ask the social worker down here if we could see if there would be any interest in a group like that. I think it would be great. When I was told about the support group there...the first thing I asked is if they had any other her2/neu gals? I was told they didn't know? I found that hard to believe since the person I asked RAN the support group? Why she wouldn't tell me is strange. O'well...

Chelee

09-02-2007, 01:58 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	I think that's a great idea. I wish they had done that at my place. Like Steph mentioned...the place I'm at really wasn't set-up for that. Some of us use to joke that they didn't want any of us talking. There are about 11 chemo chairs and they are all seperated about 5 feet or so away from each other. They are all open for everyone to see you unless you want the curtain pulled closed around you which no one did. There we so many that really felt like they didn't want any of us talking to each other? If we signed in for our chemo...the minute any of us would start a conversation they would run out and grab you. Then if you started to talk to the person next to you they would also come up and find something to do to inturrupt any talk. It might of been coincidental...but I know many of the women commented about this. We all wanted to talk and share information...but it seemed impossible. So I like what this group did in Bakersfield. That would of been awesome. I might ask the social worker down here if we could see if there would be any interest in a group like that. I think it would be great. When I was told about the support group there...the first thing I asked is if they had any other her2/neu gals? I was told they didn't know? I found that hard to believe since the person I asked RAN the support group? Why she wouldn't tell me is strange. O'well... Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.