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Chelee · 08-31-2007, 12:23 AM

Hi Kate, My platelets dropped around cycle 5 I believe. Took a major dive. I bottomed out at 30 which they did NOT like. I was suppose to have a transfusion but instead they gave me some crap called Neumega. When I got online and read about it I didn't like what I read and refused to take anymore of these shots. Plus I asked on this board about Neumega and no one knew about it...that really concerned me especially since I don't trust my onc.

So I was told to be VERY careful and don't bump into things and tell them if I have headaches, or any brusing ect. I was told to eat really well. High in protein. I was NOT hungry on TCH. Food = YUCK. LOL But I did my best to eat nothing but protein and it didn't take long and my platelets *slowly* started going up. I was trying to avoid the transfusion and I did. So hang in there. They might make you postpone one week to see if your platelets go up before they give you your next cycle of TCH. Keeping you in my thoughts and prayers...hang in there.

Chelee

08-31-2007, 12:23 AM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Kate, My platelets dropped around cycle 5 I believe. Took a major dive. I bottomed out at 30 which they did NOT like. I was suppose to have a transfusion but instead they gave me some crap called Neumega. When I got online and read about it I didn't like what I read and refused to take anymore of these shots. Plus I asked on this board about Neumega and no one knew about it...that really concerned me especially since I don't trust my onc. So I was told to be VERY careful and don't bump into things and tell them if I have headaches, or any brusing ect. I was told to eat really well. High in protein. I was NOT hungry on TCH. Food = YUCK. LOL But I did my best to eat nothing but protein and it didn't take long and my platelets slowly started going up. I was trying to avoid the transfusion and I did. So hang in there. They might make you postpone one week to see if your platelets go up before they give you your next cycle of TCH. Keeping you in my thoughts and prayers...hang in there. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.