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Old 08-26-2007, 11:40 PM   #30
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Sheila,

I talked to my daughter today about what you are going through. She is my caregiver now and is taking me for my weekly infusions since with all the premed I just wouldn't be able to drive. Her insight was that it is very difficult on the caregiver to see someone they love go through all the chemo and suffer with side effects. She said that it's particulary hard for her since I have always been so strong and that it's scary -- she's afraid. Needing her help puts a whole different light on the subject. I think your husband is afraid since you have always been able to go to your treatments alone and now all of sudden you can't. He's terrified of losing you. It's much easier to accept this dreadful disease from a caregivers point of view when the patient is able to continue on with life as it was before. This is such a drastic change now and fear is a terrible thing. It's hard to accept the fact that the old Sheila is gone and there is a new Sheila here now. Hopefully, this treatment will work for you quickly and things can get back to "normal." Oh how I hate that word! I think there should be support groups stricly geared to caregivers. Hang in there Sheila, things will get better. Your husband loves you but right now he is frightened and doesn't know how to handle it.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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