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Wow, the pain you describe sounds really horrible. I wish I could offer advice. I did have a bilateral mast., but I chose not to have reconstruction. So I can not offer advice on the pain. Keep searching for answers, it does not sound normal to me either. I hope others will post their advice and experience.
Catherine
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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