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My heart is breaking, also. What a wonderful relationship you and your husband have together. One thing that kept coming up for me while I was reading your post is that when I initially started treatment, I felt so much worse than before treatment, that I thought, surely this disease is spreading or I wouldn't feel this bad. After 6 months of tx, I was NED for 6 months and then had a small reoccurance. Again, after I started tx, I felt so bad that again I felt like the disease was spreading rapidly and I must be near death. So the point I am trying to convey is that I feel so much worse during treatment than I when I am not on treatment, so I am hoping that is what is happening to your husband. I will continue to keep both of you in my prayers and I will keep believing in a miracle for you, your husband and all of us.
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