|
Dear Marie: Your post reflects all the feelings and emotions that I have been feeling for months. I am so sorry that you are having to endure the hellish roller coaster ride. My partner , Patricia, has been in the hospital for 3 of the last four months. she has been fighting this disease since 2001 and basically became an invalid in Feb. We have been together 14 years and it is breaking my heart to see this disease destroy her life. About two months ago I thought for sure her fight was over but the women on this board encouraged me and and gave me the hope to believe in a miracle. Pat tried another chemo and it pulled her out of the jaws af death. She is still fighting and I am still searching for another miracle drug and praying everyday.I can understand your feelings of despair when your husband says that he is fighting but his body is tired. When Pat says these things I get a punch to the chest feeling and I am unable to see how I will go on without her. I am just glad that we have each other here on the support board. Thank you for sharing your innermost feelings.
Donna In Birmingham
Pat Bailey 55 yo
2001 DX DCIS, mastectomy & reconn
2003 dx mets to lungs, double thoracotomy for bx, herceptin, navelbene,carbpl,
2005chest wall reoccurrance, rads, repeat herceptin, navelbene,carbopl
2006more mets to chest wall, axillary and rt neck lymph system, Taxotere, herceptin
x 2 treatments, inflammtion to lungs,pneumonia, stop taxotere , rads
2007disease progression to small intestine, rt. axilla, lungs,epirub,5FU,cytoxan x 2 tx
disease halted but counts so low and so weak that chemo stopped.
July2007 disease progression, given 3 weeks to live. Began herceptin, doxorubicin
2 weeks later ready to leave hopitaland ambulatory with assistance. 1 week at home then
signs of lymphedema and epidermal skin rash returning. #2 dose of doxil given with no response.
Gemzar started while back in hospital with slow positive response. Back home but terrible weakness and stomatitis.
Stop doxil. Start Gemzar, tykerb and herceptin on 8/21/07
|