HER2 Support Group Forums - View Single Post - CAUTION~May Contain Depressing Thoughts About Husband's Progress!!

Barbara H. · 08-21-2007, 03:20 PM

Hi Marie,
My heart just goes out to you. You certainly conveyed your fear and sadness in your post. Nevertheless, your husband has just finished a very difficult year. I am hoping that Tykerb and Xeloda will work for him, and that he will start to feel better soon. He has been through so much this summer and certainly has a right to gripe.

I can somewhat relate. I have been off chemo since last November and off Herceptin since May. I need to be off chemo in order to get into a trial that is supposed to open up soon. As a result, the bone met in my hip is growing and is making it difficult for me to sleep at night. I saw my oncologist today and he has scheduled a pet/ct for next Wednesday to see what is going on. If the hip looks really bad, then I will have to have radiation. After your husbands experience, I really do not wish to have my hip radiated. I have had bad experiences with radiation. When I had radiation to my chest nine years ago the top layer of the skin was gone by the end of it. I was not tired from it, but I was in a lot of pain by the end, but didn't miss a day from my classroom. Three years ago I had stereotactic radiation after my brain surgery. As a result, I had to have two more surgeries due to radiation necrosis. So you see, I do not have a favorable feeling about radiation. What will be, will be, but I hope this trial opens up before I need radiation.

You and your husband are in my thoughts, and truly feel, he will feel positive again soon, and be ready to endure what he needs to do to win this battle. He is lucky to have a wife who "truly believes." It sounds as if you have a wonderful marriage.

Best wishes,
Barbara H.

08-21-2007, 03:20 PM	#5
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	It's tough to be so upset and scared!! Hi Marie, My heart just goes out to you. You certainly conveyed your fear and sadness in your post. Nevertheless, your husband has just finished a very difficult year. I am hoping that Tykerb and Xeloda will work for him, and that he will start to feel better soon. He has been through so much this summer and certainly has a right to gripe. I can somewhat relate. I have been off chemo since last November and off Herceptin since May. I need to be off chemo in order to get into a trial that is supposed to open up soon. As a result, the bone met in my hip is growing and is making it difficult for me to sleep at night. I saw my oncologist today and he has scheduled a pet/ct for next Wednesday to see what is going on. If the hip looks really bad, then I will have to have radiation. After your husbands experience, I really do not wish to have my hip radiated. I have had bad experiences with radiation. When I had radiation to my chest nine years ago the top layer of the skin was gone by the end of it. I was not tired from it, but I was in a lot of pain by the end, but didn't miss a day from my classroom. Three years ago I had stereotactic radiation after my brain surgery. As a result, I had to have two more surgeries due to radiation necrosis. So you see, I do not have a favorable feeling about radiation. What will be, will be, but I hope this trial opens up before I need radiation. You and your husband are in my thoughts, and truly feel, he will feel positive again soon, and be ready to endure what he needs to do to win this battle. He is lucky to have a wife who "truly believes." It sounds as if you have a wonderful marriage. Best wishes, Barbara H.