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Old 08-18-2007, 01:14 PM   #7
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Exclamation Stomach Pain Is My Issue. Here's All I Know...

Marie, honey, Please be specific, as Brenda asked. Stomach spasms or general pain, diarrhea...????? The stomach lining does get eaten away. I had that and developed Irritable Bowel Syndrome w/Taxotere. Never had a stomach ache before in my life. Then during and after, I had the IBS daily till '05. '98-'05 I'd take up to 20 Imodium in a day, just to try and control the problem. I was terrified to leave the house. I turned myself in to the onc, about Imodium. He thought and asked, then what happens, when you stop it? What happens the next day? I am normal, I said. Okay! Then go for it, he said. I was afraid to exceed the no more than 4 a day warning, but was desperate.

The Oxywhatever for pain helped. It has codeine in it. Another onc told me, if in doubt, take it! If nothing else, the codeine will help stop the diarrhea. Librax helped the spasms, but taken every 6 hrs makes you groggy. Donnatol is good sometimes for less of a problem.

Wobenzym N (2 in AM and 2 in PM, not as recommended on label) changed my life. My NY onc nutritionist gave m that one. After Wobenzym, I was sick only 1 o 2 days a wk vs 7 days a wk. I stocked up so as NEVER to be without. It became a lifesaver!

Then, Effexor, to stop my hot flashing (and did not) DID stop my IBS -- after 8 yrs of suffering. It was so wonderful, I stopped the Wobenzym.

Also, probiotic Lactobacilius Asidopholus (taken twice a day) has finally relieved the horrible all day gas pains all but completely. They were so bad I'd turn ashen and think I was dying. Honest. Now, a distant memory.

So, I HOPE and PRAY this helps Ed get some quick relief! There is absolutely no reason to suffer, my oncs always tell me. You've just got to find what works for you. And fast. Enough pain. Please let us hear how things are going, Marie -- for Ed, and for you. YOU'VE BEEN THROUGH SO MUCH. This is remedyable (how do you spell that anyway?). We love your fighting SPIRIT. Here's to getting this #*!? thing hammered...!

BIG HUGS, Andi

__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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