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Old 08-18-2007, 09:35 AM   #6
pattyz
Senior Member
 
Join Date: Mar 2006
Posts: 306
Julie,

I had Navelbine/Herceptin for my mediastinal nodal mets, (confirmed by surgical biopsy). "Spot" on pelvis and lung.

I don't remember a fever. But, I had the short sharp trunk area pains for several days after the first two infusions, including a 30 minute jaw ache that was just about 10 mins with the second infusion.

Subsequently, the fatigue was the issue. And a UTI did not respond to tx an went to my kidney...which sent me to ER.

I also had an undiagnosed severe pain in my upper arm which lasted for several weeks. No test was able to show a problem.

My scans showed NED after just four rounds and I chose to stop both the N and the H. That was at the end of '02, maybe into Jan of '03. My body has remained NED. Just brain mets issues since then.

My first dx in Jan. 2000 was Stage IIIb, two invasive tumors, Inflammatory and 6+ nodes of 26. ER+ PR- Her2+++ (at mets dx.)

Hope that is somewhat helpful to you,
best wishes to you on this tx, too,
pattyz
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