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Deceased
Join Date: Mar 2006
Location: Virginia
Posts: 113
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Oh My Dear Sweet Marie
How I can understand your deep frustration and moments of anger. We were denied authorization from our insurance company twice for Xeloda and only had one appeal left. We were terrified of the thought of being denied again because we didn't know how we were going to be able to afford it. Well, the drug company that makes Xeloda is Roche and they were willing to give us the Xeloda until the insurance company made their decision and they sounded as though they would continue to provide it if the insurance company did deny us. Luckily the insurance company did come through for us at the last minute. While they were denying us we were paying for the Xeloda out of pocket, we are seeking reimbursement now.
Here is there information so that you may call them and hopefully get the same offer of assistance that we did. We are in a higher income bracket too because of my husbands ability to work and we don't have a lot of income going out.
Roche Oncoline Program
PO Box 18647
Louisville, KY 40261
Sharon Morrison
Oncoline PAP Customer Service
PO Box 18647
Louisville, KY 40261
Their phone number is: Roche Patient Assistance Program 1-888-587-9438
They will send you or fax to your doctor which is quicker the form that you need to fill out and one for your physician to fill out. They require that you provide your most recent income tax documentation and that your physician include a prescription for up to three months of Xeloda. If you qualify for enrollment in the program, they will contact your physician every 3 months to request new prescription information.
Also for the Tykerb the pharmaceutical company that makes it is Glaxo Smith Kline.
Here are two links that may be of help to you: This first one is all about Patient Assistance Program Frequently Asked Questions http://www.ashp.org/PAP/FAQs.cfm?cfi...Token=26705328
www.freemedicineprogram.com
You and Ed are always in my thoughts and prayers. I am sorry that I haven't been in touch lately, we too have been riding on an emotional roller coaster lately, one day good news the next day bad news, and back & forth like this for about a month. It is exhausting, frustrating, mentally, emotionally and physically taxing to say the least.
I couldn't help but to be thinking of you when I made my post today "Kicked in the Teeth Once Again," please be sure to take to heart what I said in the post and if you can go buy the two books that I mentioned because I know that they will do for you what they have done for me because we are both two strong believers who are COMMANDING the MIRACLE NOW! And I know that we both shall receive it, I am praying that you do as I pray for others and myself also.
I love you soooo much Sweetie and if I could wrap my arms around you right now I would. You contact me at any time and I will get back to you as soon as possible, I have more free time on my hands now so here I come, lol.
You try to stay strong Sweetie and don't be afraid to lean on others when you grow weary. We all here love you sooo very much, you bring such inspiration, hope, support, encouragement, love, caring, compassion, honesty and your beautiful spirit to and in each one of your posts that we all can't help but to be touched and our lives enriched so deeply by each and every one of them. Embrace that love and wrap yourself up in it like a warm hug and know that I am saying a prayer of protection for you and Ed, asking God and Christ to build a wall of armor around you both so that satan can not touch nor torment you both with his wicked lies and thoughts of confusion and doubt that he tries to plague our minds with. God and Christ will only allow feelings and thoughts of peace, calm, strength and tranquility into your spirit, soul, body and mind and the knowledge that They are with you both and loving you both, protecting you both, fulfilling all of your needs and answering all prayers that are lifted up for you and Ed in His Precious Name, Jesus Christ Our Saviour this I pray. Amen.
Love, Hugs & God Bless,
Nicola
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March 18, 2004, Age 36
Diagnosed: High Grade DCIS, Microcalcifications, Solid and Comedo type, Nuclear grade 3 with 1mm margins, ER+, PR+, Stage "0"
3-8-04 Left breast lumpectomy.
4-1-04 thru 6-24-04 Adjuvant XRT.
11-29-05 Gallbladder attack.
12-01-05 Surgery to have gallbladder removed, discovered cancer spread throughout liver in both lobes, HER2+ amplified by FISH and interestingly enough negative for ER and PR.
12-9-05 Clinical trial consisting of Tykerb, Taxol and Herceptin along with Zometa once a month. On clinical trial for 15 months before liver mets started progressing. Started on Navelbine 3-9-07. Navelbine failed, switched to Gemzar July 07. MRI of the brain on July 7, 07. Results revealed multiple brain tumors. Taken off of Gemzar immediately and began 15 rounds of WBR which I completed on July 26, 07. CT scan on 7-26-07 significant progression in the liver mets. I am now getting ready to start on Xeloda along with Herceptin and Zometa once a month.
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